Welcome to LITSA
The Tourette Syndrome Association, Inc., or TSA, is the only national voluntary non-profit membership organization in this field. Its mission is to identify the cause of, find the cure for and control the effects of this disorder. Today, TSA has grown into a major national health-related organization with approximately 50 U.S. Chapters and 300 support groups, and International Contacts around the world.
The Long Island chapter of the Tourette Syndrome Association (LI-TSA) is run by volunteers. Our mission is to provide help (at the community level) to families affected by Tourette Syndrome by providing services to its members in Nassau and Suffolk counties.
Start Callout Box
~ Thank you ~
to everyone who came out to join in the fun and festivities
of our annual year-end holiday party!
Family members from kids, to parents and grandparents
had a truly merry evening.
2014 Youth Ambassador Leadership Training!
March 18-20, 2014 at the Crystal Gateway Marriott in Arlington, VA.
Monday, December 2, 2013: Deadline for Youth Ambassador Applications
to be submitted to LI TSA
Friday, January 17, 2014: All candidates of the Youth Ambassador Training notified of TSA decision by National TSA
Please join us for this fun activity for the whole family!
The NY Islanders have partnered again with LI-TSA in their continuing efforts to support LI communities, and is offering our Long Island TSA members, families, and friends, special discounted tickets for
Martin Luther Day!
Monday January 20th @ 1PM
NY Islanders VS. Philadelphia Flyers
Discounted tickets $27.00 & $45.00
Please CLICK HERE to download a flyer for information and ticket purchase. Any questions regarding your purchase should be directed to:
NY Islanders Ticket Sales Rep.- Sam Berg at 516-501-6895 ; or
Amy Fuhrman - (LI-TSA email )Amysue1011@aol.com.
Please note that a block of seats have been reserved especially for LI-TSA members/family/friends at designated discounted prices and must be purchased by January 2nd. After this date, availability will be limited!
We hope to see you there!!
Register for the TSA 2014 National Conference
March 20-23, 2014
Crystal Gateway Marriott Arlington, VA
Registration is now open!
Check out the special Early Bird Rates!
Nowhere else can people come together in a warm, family-like atmosphere to learn from the nation's primary practitioners and researchers in the field, while gaining support, building friendships, and sharing experiences with peers.
The National Conference offers sessions for adults with TS, parents, teens and professionals on a variety of topics grouped by track, as well as provides networking opportunities.
Tourette's Research StudyPeople with Tourette’s disorder are asked to participate in a research study with an investigational drug being conducted by North Shore-Long Island Jewish Health System.
You may be eligible to participate in this study if you:
- Are male or female aged 12 through 17
- Have been diagnosed with Tourette’s disorder
- Have symptoms of TD that impair school, occupational, and/or social function.
To participate you also must :
- NOT have Participated in any other AZD5213 study
- Must be able to swallow study drug capsules
- Cannot have a significant fear of needles and/or blood draw
- Cannot have hard access to veins
- Must not have a history of suicidal behavior
Chrissy Demers, Research Nurse
Cathy Budman, MD
400 Community Drive
Manhasset, New York 11030
Phone: (516) 562-3224
Fax: (516) 562.3997
Massapequa Stands Up to Bullying
event which hosted
"Bullying Stops Here"
held in Marjorie Post Park on 9/22.
YAs Dylan and Jackie with Jamie Isaacs founder of the Jamie Isaacs Foundation For Anti-Bullying, Inc.
YA Dylan and Demetria educating attendees about TS
TSA Youth Ambassador Carlos Guevara on “The X-Factor”
Carlos Guevara, a TSA Youth Ambassador trained in 2012, was on “The X-Factor” this past Wednesday night! Not only was it an amazing performance but he also raised a lot of awareness about Tourette Syndrome. His mom, Eliesha, is the Steering Committee Leader of the new South Carolina Support Group.
Carlos showed once again that TS doesn't stop you from pursuing your dreams! He even made Simon Cowell smile who said Carlos was the best performance of the night and said to him: "You know what I like about you is that you're not a victim. You know, you've got this issue, but most importantly, you haven't let that stop you from doing what you've dreamt of doing... You've actually got a great voice."
We look forward to sharing this journey with Carlos and his mom Eliesha! You can watch the fabulous clip here:
Carlos Guevara - Gravity - The X Factor 2013 by caseycarlsonx1
"Ray Donovan" star Dash Mihok featured in CNN article:
Actor: I hid Tourette's from Hollywood
In The Human Factor,
CNN profiles survivors who have overcome the odds.
~ THANK YOU ~
to all who wrote to your Senators and Representatives
Congressional Caucus on Tourette Syndrome Briefing An
Panel of speakers: Kathy Giordano, Cheryl Tellis, Marques Seme, Tamara Hershey, Ph.D., Douglas Woods, Ph.D., Jackson Guyton and Michele Guyton
On September 17, the national Tourette Syndrome Association's Bipartisan Congressional Caucus on Tourette Syndrome Briefing, "Understanding Tourette Syndrome and Making Connections," was held in Washington D.C. in Room 2253 of the Rayburn House Office Building. The room was sponsored by Congressman Steve Cohen of TN, Co-Chair of the Caucus. Over 50 attendees gathered from 28 different Congressional offices and from seven different federal agencies who heard presentations to help them earn and make a connection to the issues being represented by the national TSA on behalf of hundreds and thousands of Americans living with TS. To read the full story including portions from each speakers' testimonies, click HERE. To see photos from the Briefing, you can view the photo album HERE.
See the picture gallery
For pictures of the recent
~Celebrations In The Kitchen ~
“The Sweetest Memories Start In The Kitchen!”
Sunday, September 22
Thank you !
Thank you to all our chapter members and their families and friends who came out today to join in our Family Fun Day.
Thanks to you, our annual fundraiser was a success, and everyone had a great time.
Thank you, again!
This event was sponsored by:
See Pictures from Family Fun Day 2013:
Thank you to all of the LI-TSA chapter members
who came out to participate in the TSA Walk at Flushing Meadows Park! Once again, we were blessed with the weather, and enjoyed some fine Sunday morning exercise while promoting TS awareness. We were very proud of, and delighted by, the strong showing by our chapter members. At least 53 members and 30+ friends & family of members registered to walk! Thank you so very much! It was a great day, with the Long Island Chapter's Brady Brothers performing a memorable show, and other performers shining, as well. It was also the last event officiated by current TSA President Judit Unger, who is retiring. We thank her for all of her efforts on behalf of TS, and wish her well as she moves on to the next phase of her life!
American Idol Contestant Dave Pittman and
LI-TSA Youth Ambassador Steven Argenzio
CLICK HERE for more pictures!
~~ On June 5th Dr. Budman Chaired a symposia she organized ~~
The symposia, Tourette Syndrome: What Makes someone Tic,
was part of the Centricity Series, Biomedical Research Symposia at The Feinstein Institute for Medical Research. It was extremely well attended by researchers and physicians and was a great success.
LI TSA extends heartfelt gratitude to Dr. Budman for all she does for those living with TS.
Dear LI-TSA Chapter Members,
Wonderful News! Our efforts and those of so many individuals affected by Tourette Syndrome throughout the country have resulted in establishment of the First Ever Congressional Caucus on Tourette Syndrome! New York's own Peter King spearheaded this effort, and we are so grateful to him for seeing this through. NY Representatives Carolyn McCarthy and Steve Israel are also caucus members. Please follow the link below for the full press release by National TSA:
Heartfelt thanks to Long Island's
Peter King, Carolyn McCarthy and Steve Israel
for their support in this important matter.
Jen Zwilling, founder of the TSA Youth Ambassador Program presenting Representative Peter King with the National TSA Public Policy Award at Congressional Briefing in the Capitol on March 21, 2013
Coming soon: Click Here for more Photos