Welcome to LITSA
The Tourette Syndrome Association, Inc., or TSA, is the only national voluntary non-profit membership organization in this field. Its mission is to identify the cause of, find the cure for and control the effects of this disorder. Today, TSA has grown into a major national health-related organization with approximately 50 U.S. Chapters and 300 support groups, and International Contacts around the world.
The Long Island chapter of the Tourette Syndrome Association (LI-TSA) is run by volunteers. Our mission is to provide help (at the community level) to families affected by Tourette Syndrome by providing services to its members in Nassau and Suffolk counties.
Start Callout Box
***Save the Dates***
(please scroll down for important information about each upcoming event)
~Two Parenting Workshops in the month of March~
March 2nd - Dr. Laura Braider
March 30th - Dr. Jill Sonnenklar
11:30am-1:00pm DeMatteis Center
*** please note there will not be teen or children's group on March 2nd but there will be childcare ***
~Tourette Syndrome Behavioral Therapy Institute~
March 9-10, 2014
at The Feinstein Institute for Medical Research
on the Manhasset campus of the North Shore-LIJ Health System, Long Island NY
~NATIONAL TSA ADVOCACY DAY~
will take place on Thursday, March 20, 2014
~Family Fun Day~
June 14, 2014
Vanderbilt Elementary School Field
350 Deer Park Avenue
Dix Hills, NY
This event sponsored by:
Scroll down to see important information on how YOU can help!
LI-TSA expresses its heartfelt thanks to
Dr. Laura Braider
who so generously shared her time and considerable expertise with us on Sunday, March 2nd. Chapter members went home with some very effective tools to add to their parenting toolbox, and hope that consistent use of those tools will lead to better self-control and cooperation in their children, and a happier home.
LI TSA had a great Morning at the Movies....
as The Lego Movie states....
"everything is awesome"!
Bagels, juice, soda, pop corn, catching up!
We had a theater to ourselves! Priceless!
~LI-TSA is happy to announce two parenting workshops in March~
March 2nd - Dr. Laura Braider
March 30th - Dr. Jill Sonnenklar
Coffee, juice and bagels will be provided
March 2, 2014
(Dr. Laura Braider)
~Dr. Laura Braider will present about parenting those with diagnoses of TS and OCD and then open up for a Q&A~
Laura Braider, Ph.D., is supervising and clinical psychologist at the OCD Center at Zucker Hillside Hospital of the North Shore – LIJ Health System and an Assistant Professor of Psychiatry at the Hofstra University School of Medicine. She specializes in the treatment of OCD, anxiety disorders, and movement disorders. Dr. Braider completed her doctorate at Hofstra University and received additional training through The Center for the Treatment and Study of Anxiety at the University of Pennsylvania, under the supervision of Elna Yadin PhD. She also serves as the Director of the Behavioral Health College Partnership (BHCP) of the North Shore-LIJ Health System. BHCP was established in collaboration with regional colleges and universities to provide acute and post-acute psychiatric services to undergraduate and graduate students.
March 30, 2014
(Dr. Jill Sonneklar)
~Dr. Jill Sonnenklar will present on parenting those diagnosed with TS and ADHD and then open up for a Q&A~
Dr.Sonnenklar is a Senior Psychologist within the North Shore LIJ HealthSystem. She runs the Family Based Group Treatment Program for Children with ADHD and their Parents at the Cohen Children’sMedical Center.
Dr. Sonnenklar hasa private practice in which she specializes in the treatment of ADHD, parenting issues, stress, trauma (including chronictrauma and PTSD), and anxiety disorders. She has been trained in CBIT (Comprehensive Behavioral Intervention for Tics) and has worked with many patients with tic disorders.
Dr. Sonnenklar is the Director of the Crime Victims Program in the Division of Trauma Psychiatry. This grant funded program enables victims of crimes, and their family members, to receive evidence-based psychotherapy. She is one of the co-authors of SPARCS (Structured Psychotherapy for Adolescents Responding to Chronic Stress), a manualized treatment for adolescents who experienced trauma.
Dr. Sonnenklar is an Assistant Professor in the Department of Psychiatry at the Hofstra University School of Medicine. She received her Ph.D. in Clinical Psychology from St. John’s University.
We are delighted to announce
that a regional Tourette Syndrome Behavioral Therapy Institute
will be held on March 9-10, 2014 at The Feinstein Institute for Medical Research on the Manhasset campus of the North Shore-LIJ Health System, Long Island NY.
please click here for more info and to register for this very exciting program
This is the same day as the National “Trip to the Hill” in Washington, D.C. when more than one hundred Youth Ambassadors and other TSA representatives will meet with Congressional staff members.
Please join us and make a difference by scheduling appointments with local district offices of our Senators and and House Members/Congressmen.
This is an important opportunity to educate and advocate – by sharing stories about life with TS, and by asking for Congress to support key TSA initiatives.
This is a really great experience for children and parents, alike, and the process is easy! National TSA has a webinar scheduled to coach those who are interested in participating in this event.
If you are able to locally participate in Advocacy Day by making an appointment(s) with representatives on Long Island--
please contact us at
for more information.
Register for the TSA 2014 National Conference
March 20-23, 2014
Crystal Gateway Marriott Arlington, VA
Registration is now open!
Check out the special Early Bird Rates!
Nowhere else can people come together in a warm, family-like atmosphere to learn from the nation's primary practitioners and researchers in the field, while gaining support, building friendships, and sharing experiences with peers.
The National Conference offers sessions for adults with TS, parents, teens and professionals on a variety of topics grouped by track, as well as provides networking opportunities.
FAMILY FUN DAY!
Tourette Syndrome Association of Long Island, Inc.
When: Saturday June 14, 2014 (Rain or Shine)
Where: Vanderbilt Elementary School Field
350 Deer Park Avenue, Dix Hills, New York 11746
Admission Fee: $10 PER CHILD INCLUDES ENTRY & T-SHIRT
PLEASE JOIN US FOR A FAMILY DAY OF FUN, LIVE MUSIC FROM LOCAL MUSICIANS, CARNIVAL GAMES, CRAFTS, INFLATABLES, FACE PAINTING ($2), AND TIE-DYEING ($2). REFRESHMENTS AVAILABLE FOR PURCHASE. JOIN US AND MAKE A DIFFERENCE. THE COST IS ONLY 10 DOLLARS FOR CHILDREN—NO FEE FOR ADULTS—AND ALL PROCEEDS GO DIRECTLY TO THE TOURETTE SYNDROME ASSOCIATION OF LONG ISLAND, INC. YOUR SUPPORT WILL GO FAR TO HELP CHILDREN WHOSE LIVES ARE IMPACTED BY TOURETTE SYNDROME.
FOR MORE INFORMATION GO TO WWW.LI-TSA.ORG.
Inflatables, Live Music, Carnival Games
HOW TO HELP
Press on the links below to download a cover letter and a sponsorship form that can be used to solicit sponsors for Family Fun Day. Please consider helping us continue to fund great programs and services for our children.
to everyone who came out to join in the fun and festivities
of our annual year-end holiday party!
Family members from kids, to parents and grandparents
had a truly merry evening.
(Click the picture above for more pictures!)
Tourette's Research StudyPeople with Tourette’s disorder are asked to participate in a research study with an investigational drug being conducted by North Shore-Long Island Jewish Health System.
You may be eligible to participate in this study if you:
- Are male or female aged 12 through 17
- Have been diagnosed with Tourette’s disorder
- Have symptoms of TD that impair school, occupational, and/or social function.
To participate you also must :
- NOT have Participated in any other AZD5213 study
- Must be able to swallow study drug capsules
- Cannot have a significant fear of needles and/or blood draw
- Cannot have hard access to veins
- Must not have a history of suicidal behavior
Chrissy Demers, Research Nurse
Cathy Budman, MD
400 Community Drive
Manhasset, New York 11030
Phone: (516) 562-3224
Fax: (516) 562.3997
Massapequa Stands Up to Bullying
event which hosted
"Bullying Stops Here"
held in Marjorie Post Park on 9/22.
YAs Dylan and Jackie with Jamie Isaacs founder of the Jamie Isaacs Foundation For Anti-Bullying, Inc.
YA Dylan and Demetria educating attendees about TS
~ THANK YOU ~
to all who wrote to your Senators and Representatives
Congressional Caucus on Tourette Syndrome Briefing An
Panel of speakers: Kathy Giordano, Cheryl Tellis, Marques Seme, Tamara Hershey, Ph.D., Douglas Woods, Ph.D., Jackson Guyton and Michele Guyton
On September 17, the national Tourette Syndrome Association's Bipartisan Congressional Caucus on Tourette Syndrome Briefing, "Understanding Tourette Syndrome and Making Connections," was held in Washington D.C. in Room 2253 of the Rayburn House Office Building. The room was sponsored by Congressman Steve Cohen of TN, Co-Chair of the Caucus. Over 50 attendees gathered from 28 different Congressional offices and from seven different federal agencies who heard presentations to help them earn and make a connection to the issues being represented by the national TSA on behalf of hundreds and thousands of Americans living with TS. To read the full story including portions from each speakers' testimonies, click HERE. To see photos from the Briefing, you can view the photo album HERE.
See the picture gallery
For pictures of the recent
~Celebrations In The Kitchen ~
“The Sweetest Memories Start In The Kitchen!”
Sunday, September 22
Thank you !
Thank you to all our chapter members and their families and friends who came out today to join in our Family Fun Day.
Thanks to you, our annual fundraiser was a success, and everyone had a great time.
Thank you, again!
This event was sponsored by:
See Pictures from Family Fun Day 2013:
Thank you to all of the LI-TSA chapter members
who came out to participate in the TSA Walk at Flushing Meadows Park! Once again, we were blessed with the weather, and enjoyed some fine Sunday morning exercise while promoting TS awareness. We were very proud of, and delighted by, the strong showing by our chapter members. At least 53 members and 30+ friends & family of members registered to walk! Thank you so very much! It was a great day, with the Long Island Chapter's Brady Brothers performing a memorable show, and other performers shining, as well. It was also the last event officiated by current TSA President Judit Unger, who is retiring. We thank her for all of her efforts on behalf of TS, and wish her well as she moves on to the next phase of her life!
American Idol Contestant Dave Pittman and
LI-TSA Youth Ambassador Steven Argenzio
CLICK HERE for more pictures!
~~ On June 5th Dr. Budman Chaired a symposia she organized ~~
The symposia, Tourette Syndrome: What Makes someone Tic,
was part of the Centricity Series, Biomedical Research Symposia at The Feinstein Institute for Medical Research. It was extremely well attended by researchers and physicians and was a great success.
LI TSA extends heartfelt gratitude to Dr. Budman for all she does for those living with TS.
Dear LI-TSA Chapter Members,
Wonderful News! Our efforts and those of so many individuals affected by Tourette Syndrome throughout the country have resulted in establishment of the First Ever Congressional Caucus on Tourette Syndrome! New York's own Peter King spearheaded this effort, and we are so grateful to him for seeing this through. NY Representatives Carolyn McCarthy and Steve Israel are also caucus members. Please follow the link below for the full press release by National TSA:
Heartfelt thanks to Long Island's
Peter King, Carolyn McCarthy and Steve Israel
for their support in this important matter.
Jen Zwilling, founder of the TSA Youth Ambassador Program presenting Representative Peter King with the National TSA Public Policy Award at Congressional Briefing in the Capitol on March 21, 2013
Coming soon: Click Here for more Photos