Welcome to LITSA

Montage of Long Island TSA
Long Island's TSA: Founding Youth Ambassador Jennifer Zwilling with Hillary Clinton, Steven Argenzio with Congresswoman Carolyn McCarthy, Shoshana Rabinowitz & Tyler Bloch with Congressman Steve Isreal, LI-TSA Youth Ambassadors.

The Tourette Syndrome Association, Inc., or TSA, is the only national voluntary non-profit membership organization in this field. Its mission is to identify the cause of, find the cure for and control the effects of this disorder. Today, TSA has grown into a major national health-related organization with approximately 50 U.S. Chapters and 300 support groups, and International Contacts around the world.

The Long Island chapter of the Tourette Syndrome Association (LI-TSA) is run by volunteers. Our mission is to provide help (at the community level) to families affected by Tourette Syndrome by providing services to its members in Nassau and Suffolk counties.

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What's New


~ TS Awareness Month is May 15-June 15 ~


***Save the Dates***


(please scroll down for important information about each upcoming event)

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TEAM TSA National Awareness 5K Walk
Sunday June 8, 2013
10 a.m.
Flushing Meadow Corona Park
Flushing Queens, NY

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~Family Fun Day~
June 14, 2014
1:00-5:00pm
Vanderbilt Elementary School Field
350 Deer Park Avenue
Dix Hills, NY

 

This event sponsored by:

Astoria Federal

Click tab on left side bar to see how YOU can help!
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TEAM TSA National Awareness 5K Walk
10 a.m. Sunday June 8, 2013
Flushing Meadows Corona Park
Flushing, Queens, NY


Walk With Us! Raise Awareness!
Meet Others Connected to TS!
Help us fund TS Research & Educational Programs
We have a LI TSA team for this walk!
~Please join us~


Click HERE to register

and when you get to the page click... Register Now


When you get to the box to select a team

--select Long Island TSA (LI TSA) Captain-Jen Argenzio--
Remember to write Long Island TSA in the comment box when prompted so that LI TSA receives credit for your registration!
Hope to see you there!


Dr S

With sincere appreciation to Dr. Sonnenklar for sharing her expertise at her very informative Parenting Workshop. The information shared, as well as the interactive discussion, provided all attendees with helpful and inspiring strategies to take home.


Dr. Braider

LI-TSA expresses its heartfelt thanks to

Dr. Laura Braider

who so generously shared her time and considerable expertise with us on Sunday, March 2nd. Chapter members went home with some very effective tools to add to their parenting toolbox, and hope that consistent use of those tools will lead to better self-control and cooperation in their children, and a happier home.


Congratulations to LI TSA's newly trained YAs Ben Rabinowitz and Jake Gilbert proudly wearing their teal ties as they lobby on Capitol Hill

Ben and Jake


TSA 2014 National Conference

Trip to the Hill and Youth Ambassador training was a huge success.

national conference


March 20-23, 2014
Crystal Gateway Marriott Arlington, VA

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Jen

Our very own LI TSA Jen Zwilling, founder of the TSA Youth Ambassador Program, begins the day of training the new group of 47 2014 Youth Ambassador teams!

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YA Capitol

Newly trained 2014 YAs Ben Rabinowitz and Jake Gilbert with 2012 YA Steven Argenzio and our 2014 Junior Ambassadors Charles and Chris League

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Steve_dash_Jackie

Youth Ambassadors Steven Argenzio and Jackie Beckhardt had the opportunity to spend time with Hollywood star Dash Mihok

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A sea of teal took over Capitol Hill today as over 180 Youth Ambassadors, Chapter Leaders and TSA members and families attended a Congressional Luncheon and then had a full day of meetings with their local Representatives to advocate for Tourette Syndrome!

 

Nowhere else can people come together in a warm, family-like atmosphere to learn from the nation's primary practitioners and researchers in the field, while gaining support, building friendships, and sharing experiences with peers.

The National Conference offers sessions for adults with TS, parents, teens and professionals on a variety of topics grouped by track, as well as provides networking opportunities.


LI TSA had a great Morning at the Movies....

morning at the movies

 

morning at the movies


as The Lego Movie states....

"everything is awesome"!
Bagels, juice, soda, pop corn, catching up!
We had a theater to ourselves! Priceless!

 


TSA Holiday Party
~ Thank you ~

to everyone who came out to join in the fun and festivities
of our annual year-end holiday party!
Family members from kids, to parents and grandparents
had a truly merry evening.

(Click the picture above for more pictures!)


Tourette's Research Study

People with Tourette’s disorder are asked to participate in a research study with an investigational drug being conducted by North Shore-Long Island Jewish Health System.

You may be eligible to participate in this study if you:

  1. Are male or female aged 12 through 17
  2. Have been diagnosed with Tourette’s disorder
  3. Have symptoms of TD that impair school, occupational, and/or social function.


To participate you also must :
  1. NOT have Participated in any other AZD5213 study
  2. Must be able to swallow study drug capsules
  3. Cannot have a significant fear of needles and/or blood draw
  4. Cannot have hard access to veins
  5. Must not have a history of suicidal behavior

Contact Information

Chrissy Demers, Research Nurse
516 562-1012

Cathy Budman, MD
400 Community Drive
Manhasset, New York 11030
Phone: (516) 562-3224
Fax: (516) 562.3997
Email: cdemers@nshs.edu


~~ On June 5th Dr. Budman Chaired a symposia she organized ~~

Centricity


The symposia, Tourette Syndrome: What Makes someone Tic,
was part of the Centricity Series, Biomedical Research Symposia at The Feinstein Institute for Medical Research. It was extremely well attended by researchers and physicians and was a great success.
LI TSA extends heartfelt gratitude to Dr. Budman for all she does for those living with TS.


 

Zwilling & King

Jen Zwilling, founder of the TSA Youth Ambassador Program presenting Representative Peter King with the National TSA Public Policy Award at Congressional Briefing in the Capitol on March 21, 2013

Coming soon: Click Here for more Photos

 


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To DONATE to

LI-TSA please

click here

Donate to LI-TSA

100 % of donated funds go directly to programming for and support of

LI-TSA

 

 

To join LI-TSA please click below to enroll through National TSA


Click to visit National TSA Site

 

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