Welcome to LITSA
The Tourette Syndrome Association, Inc., or TSA, is the only national voluntary non-profit membership organization in this field. Its mission is to identify the cause of, find the cure for and control the effects of this disorder. Today, TSA has grown into a major national health-related organization with approximately 50 U.S. Chapters and 300 support groups, and International Contacts around the world.
The Long Island chapter of the Tourette Syndrome Association (LI-TSA) is run by volunteers. Our mission is to provide help (at the community level) to families affected by Tourette Syndrome by providing services to its members in Nassau and Suffolk counties.
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What's New
Dear LI-TSA Chapter Members,
Wonderful News! Our efforts and those of so many individuals affected by Tourette Syndrome throughout the country have resulted in establishment of the First Ever Congressional Caucus on Tourette Syndrome! New York's own Peter King spearheaded this effort, and we are so grateful to him for seeing this through. NY Representatives Carolyn McCarthy and Steve Israel are also caucus members. Please follow the link below for the full press release by National TSA:
Heartfelt thanks to Long Island's
Peter King, Carolyn McCarthy and Steve Israel
for their support in this important matter.
Centricity Series Symposia at Feinstein Institute
Tourette Syndrome: What Makes someone Tic
The Feinstein Institute for Medical Research
Goldman International Conference Center
Manhasset, NY 11030
Wednesday, June 5, 2013
8:00 am to 4:pm
click here for agenda and registration
**** SAVE THE DATE ****
FAMILY FUN DAY!
To Benefit
Tourette Syndrome Association Long Island Chapter, Inc
When: Saturday June 15, 2013 (Rain or Shine) 1:00-5:00pm
Where: Babylon Town Hall Softball Field 200 East Sunrise Highway Lindenhurst, NY
Admission Fee: $10 per child includes entry & T-Shirt
Please join us for a Family Day of Fun, DJ music, carnival games, crafts, inflatables. Refreshments available for purchase. Join us and make a difference. The cost is only 10 dollars for children—no fee for adults—and all proceeds go directly to the Tourette Syndrome Association of Long Island. Your support will go far to help those children whose lives are impacted by Tourette Syndrome. For more information, call 516-876-6947.
This event sponsored by:
CLICK HERE for Additional Sponsorship opportunities
Please join LI-TSA for a naturalist hike on a
~ beautiful 11 acre preserve ~
Please Note: This event has been CANCELLED
**Visit the Amazing Animal Exhibit**
*See the Live Animal Show*
Saturday, May 25th from 11:00 - 1:00
~Tanglewood Preserve~
Center for Science Teaching and Learning (CSTL)
1 Tanglewood Rd
Rockville Centre NY 11570
516-764-0045
***We'll have pizza, drinks and dessert afterward and all kids will get a goody bag to take home!***
**Free for LI-TSA members and their children**
*$20 per child for non-members*
~RAIN OR SHINE~
(in case of rain we'll have some great indoor activities!)
http://www.cstl.org/Contact_Us.htm for directions and map
R.S.V.P longisland.tsa@gmail.com
We are forming a LI TSA team for this walk!
~Please join us~
Click this link ... and when you get to the page click... Register Now
When you get to the box to select a team
--select Long Island TSA (LI TSA)--
Captain-Howard Zwilling!
TEAM TSA National Awareness 5K Walk
10 a.m. Sunday June 23, 2013
Flushing Meadows Corona Park
Walk With Us! Raise Awareness!
Meet Others Connected to TS!
Help us fund TS Research & Educational Programs!
To Register: Click here!
Company & Business Sponsorship Opportunities:
Click Here!
For Event Flyers to Distribute:
Click Here!
T-Shirts! Exhibitors! Free Food & Drinks!
Music & Entertainment! Free or discounted admission into park museums and attractions!
Convenient Tri-State area location, offering free parking, close to LIRR and subway!
American Idol Contestant Dave Pittman will sing and speak about his struggles with TS! Musical performance by the Rough Dozen and others!
Comedian and VH1 Big Morning Buzz Producer
Chelsea White will do stand-up!
HOW YOU CAN HELP
Register for the event & encourage all your family members and friends to join you! CLICK HERE
Become a TEAM CAPTAIN either as an individual or for a company and encourage, co-workers, friends and family to join your team! CLICK HERE
Ask your company to sponsor the event! For sponsorship packet:
Ask any friends connected to companies about potential sponsorship! CLICK HERE
If you know people who work in the news industry or radio and can help us spread TS awareness or if you have any product appropriate for donating for the walk please email: Michelle Staley
Jen Zwilling, founder of the TSA Youth Ambassador Program presenting Representative Peter King with the National TSA Public Policy Award at Congressional Briefing in the Capitol on March 21, 2013
Coming soon: Click Here for more Photos
LI TSA recognizes and extends gratitude and heartfelt appreciation to Brittany Reitman and Trails' End Camp, Directors Starr and Stan Goldberg and Rona and Marc Honigfeld for their generosity and support.
LI TSA welcomes our new new YAs!
Dylan Brady, Shoshana Rosenstein, Jacqueline Beckhardt and Alex Kulungian
LI-TSA extends its heartfelt appreciation to Dr. Douglas Woods, Dr. Cathy Budman, who chaired the Workshop, the Feinstein Institute, NS/LIJ, National TSA and the partnership with the CDC for making this workshop possible.Thank you, also, to the many professionals who attended. Your enthusiastic participation in this workshop, and continued interest in incorporating innovative methods in your practices offers much hope to the TS community.
Dr. Barbara Libov presented on CBIT
at the March 3rd Annual General Meeting.
LI-TSA bowling fun on Sunday, January 20th! LI-TSA members and buddies Jamie Tils and Julia Hyman
See our new photo gallery
Featuring pictures from the 2012 LITSA Holiday Party
Heartfelt appreciation and thanks to London Jewelers for generously and graciously sponsoring our kick off event!!! And to all of our friends, family and LI-TSA members, thank you for shopping and helping to support us!
~ Thank you to all of you that came to the Kick Off Event at London Jewelers, it was a wonderful turn out and we appreciate your support ~
See photos from the Navigating Tourette Syndrome Conference!
(Click the thumbnails below)
~ Thank You ~
Thank you to all the chapter members who attended today's conference, and to those who extended a personal invitation to their school personnel. The conference was a great success on all accounts, and we are delighted to have contributed to TS awareness in this very big way! Each of the talks expanded our understanding of TS from a different perspective. It was truly a fantastic day!
Thank you, again!
LI-TSA Board
See photos from Family Fun Day 2012!!! (Click the thumbnails below)
The following Photos by Anita Filippi-D’Anca © 2012:
Great day for our Long Island Chapter Members to Walk...we are one lap closer to a cure!
See photos from Nickelodeon Day of Play!!! (Click the thumbnails below)
~ See Pictures of the 2011 TSA Holiday Party ~
It's HERE! Our new LI-TSA NEWSLETTER!
Upcoming meetings of the Long Island Tourette Syndrome Association support groups will meet on the first Friday of the month until June.
Learn about participating in a TS Genetic Study at North Shore Hospital in Manhasset.
Learn about a medical research study evaluating an investigational new drug that may help reduce tics associated with Tourette Syndrome.
CONTACT: Dr. Cathy Budman at (516) 562-3223 or
Study Coordinator: Christina Lipinski at (516) 562-3224 or CLipinski@nshs.edu