Welcome to LITSA
The Tourette Syndrome Association, Inc., or TSA, is the only national voluntary non-profit membership organization in this field. Its mission is to identify the cause of, find the cure for and control the effects of this disorder. Today, TSA has grown into a major national health-related organization with approximately 50 U.S. Chapters and 300 support groups, and International Contacts around the world.
The Long Island chapter of the Tourette Syndrome Association (LI-TSA) is run by volunteers. Our mission is to provide help (at the community level) to families affected by Tourette Syndrome by providing services to its members in Nassau and Suffolk counties.
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Have a great summer!
We are looking forward to seeing you in September
at our Support Group Meeting on Friday, Sept. 5th
***Save the Dates***
"Workshop on Preparing for College"
Sunday, September 28th
~Coffee, juice & bagels will be provided~
~please note there will not be a teen or children's group September 28th but there will be childcare~
Speaker: Candy Bodner
Guidance Counselor and Private College Consultant
For over three decades Candy Bodner has guided thousands of students along the path of college exploration, selection, and admission as a High School Guidance Counselor and private college consultant. The process can often be stressful, confusing and very difficult but careful research and proper planning can yield positive results.
Candy Bodner's experience includes working with students of all ability levels, including:
· Students with special needs
· AP Scholars and National Merit Finalists
· Talented artists and musicians
· Scholar Athletes
Mrs. Bodner has been a High School Guidance Counselor for over thirty years; and has been at Jericho HS for the past 14 years. She has her MA in Counselor Education from New York University and an MA in School District Leadership.
Mrs Bodner has received the following Distinctions:
· Harvard Club of Long Island Distinguished Teacher of 2011 Award
· University of Chicago Outstanding Educator Award – 2012, 2013
~ Thank you ~
to everyone who came out to support Family Fun Day
to help make our annual fundraiser such a great success!
We couldn’t have done it without you!
We hope you had as much fun as we did!!
This event was sponsored by:
TEAM TSA National Awareness 5K Walk
Thank you to everyone who came out to walk and support LI-TSA
- With a special thanks to the Alessandri family and their friends for their support!
The Muise family leading a sea of teal...
Dylan and Cody Brady of "The Brady Brothers" from the Long Island Chapter performed along with other entertainers. Here are Dylan and Cody with 2 of their fans - Victoria & Emma
With sincere appreciation to Dr. Sonnenklar for sharing her expertise at her very informative Parenting Workshop. The information shared, as well as the interactive discussion, provided all attendees with helpful and inspiring strategies to take home.
LI-TSA expresses its heartfelt thanks to
Dr. Laura Braider
who so generously shared her time and considerable expertise with us on Sunday, March 2nd. Chapter members went home with some very effective tools to add to their parenting toolbox, and hope that consistent use of those tools will lead to better self-control and cooperation in their children, and a happier home.
Congratulations to LI TSA's newly trained YAs Ben Rabinowitz and Jake Gilbert proudly wearing their teal ties as they lobby on Capitol Hill
TSA 2014 National Conference
Trip to the Hill and Youth Ambassador training was a huge success.
March 20-23, 2014
Crystal Gateway Marriott Arlington, VA
Our very own LI TSA Jen Zwilling, founder of the TSA Youth Ambassador Program, begins the day of training the new group of 47 2014 Youth Ambassador teams!
Newly trained 2014 YAs Ben Rabinowitz and Jake Gilbert with 2012 YA Steven Argenzio and our 2014 Junior Ambassadors Charles and Chris League
Youth Ambassadors Steven Argenzio and Jackie Beckhardt had the opportunity to spend time with Hollywood star Dash Mihok
A sea of teal took over Capitol Hill today as over 180 Youth Ambassadors, Chapter Leaders and TSA members and families attended a Congressional Luncheon and then had a full day of meetings with their local Representatives to advocate for Tourette Syndrome!
Nowhere else can people come together in a warm, family-like atmosphere to learn from the nation's primary practitioners and researchers in the field, while gaining support, building friendships, and sharing experiences with peers.
The National Conference offers sessions for adults with TS, parents, teens and professionals on a variety of topics grouped by track, as well as provides networking opportunities.
LI TSA had a great Morning at the Movies....
as The Lego Movie states....
"everything is awesome"!
Bagels, juice, soda, pop corn, catching up!
We had a theater to ourselves! Priceless!
to everyone who came out to join in the fun and festivities
of our annual year-end holiday party!
Family members from kids, to parents and grandparents
had a truly merry evening.
(Click the picture above for more pictures!)
Tourette's Research StudyPeople with Tourette’s disorder are asked to participate in a research study with an investigational drug being conducted by North Shore-Long Island Jewish Health System.
You may be eligible to participate in this study if you:
- Are male or female aged 12 through 17
- Have been diagnosed with Tourette’s disorder
- Have symptoms of TD that impair school, occupational, and/or social function.
To participate you also must :
- NOT have Participated in any other AZD5213 study
- Must be able to swallow study drug capsules
- Cannot have a significant fear of needles and/or blood draw
- Cannot have hard access to veins
- Must not have a history of suicidal behavior
Chrissy Demers, Research Nurse
Cathy Budman, MD
400 Community Drive
Manhasset, New York 11030
Phone: (516) 562-3224
Fax: (516) 562.3997
~~ On June 5th Dr. Budman Chaired a symposia she organized ~~
The symposia, Tourette Syndrome: What Makes someone Tic,
was part of the Centricity Series, Biomedical Research Symposia at The Feinstein Institute for Medical Research. It was extremely well attended by researchers and physicians and was a great success.
LI TSA extends heartfelt gratitude to Dr. Budman for all she does for those living with TS.
Jen Zwilling, founder of the TSA Youth Ambassador Program presenting Representative Peter King with the National TSA Public Policy Award at Congressional Briefing in the Capitol on March 21, 2013
Coming soon: Click Here for more Photos