Welcome to LITSA

Montage of Long Island TSA
Long Island's TSA: Founding Youth Ambassador Jennifer Zwilling with Hillary Clinton, Steven Argenzio with Congresswoman Carolyn McCarthy, Shoshana Rabinowitz & Tyler Bloch with Congressman Steve Isreal, LI-TSA Youth Ambassadors.

The Tourette Syndrome Association, Inc., or TSA, is the only national voluntary non-profit membership organization in this field. Its mission is to identify the cause of, find the cure for and control the effects of this disorder. Today, TSA has grown into a major national health-related organization with approximately 50 U.S. Chapters and 300 support groups, and International Contacts around the world.

The Long Island chapter of the Tourette Syndrome Association (LI-TSA) is run by volunteers. Our mission is to provide help (at the community level) to families affected by Tourette Syndrome by providing services to its members in Nassau and Suffolk counties.

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What's New

***Save the Dates***


Friday, March 6th: Support Group; Yoga Night!

Sunday, March 8th: Presentation - "Managing OCD & Anxiety"

March 22nd: Presentation - “Engendering social skills in our children"

~ See below for details ~

Friday, March 6th, 2015

~Support Group~
7:30 - 9:00PM
DeMatteis Center/101 Northern Blvd./Greenvale, NY 11548

~ Yoga Night ~

Yoga means "union " in Sanskrit. It is the coming together of mind and body. Join Shelly and Tyler for a nite of yoga fun where you will practice yoga postures while breathing and building strength, flexibility and confidence. Wear some comfortable gym clothes and bring a towel or a mat. Light music will also help quiet your mind

“Managing OCD & Anxiety"
Sunday, March 8th
11:30am -1:00pm
~Coffee, juice & bagels will be provided~
~please note there will not be a teen or children's group February 8th but there will be childcare~
Speaker: Dr. Christman

“Engendering social skills in our children"
Sunday, March 22nd
11:30am -1:00pm
~Coffee, juice & bagels will be provided~
~please note there will not be a teen or children's group February 8th but there will be childcare~
Speaker: Dr. Sheehan, from Aspire


~ Pooch Social ~

Everyone had an amazing time interacting, playing games and doing activities with certified therapy dogs at the DogAbility Center! Everyone also enjoyed the opportunity to mingle and have pizza, drinks and dessert


Pooch Social


Thank you for all of you who came out and enjoyed bagels, juice, soda, pop corn, catching up and lots of laughs watchingAlexander and the Terrible, Horrible, NO Good, Very Bad Day



LI-TSA expresses its sincere appreciation to

Candy Bodner

for her very informative workshop on Preparing For College. The information was extremely well received and all attendees were so grateful for the helpful handouts, strategies and timetable discussed to begin this journey!

Call for input regarding possible adult support/social meetings

In response to several inquiries, and in an effort to reach and serve all members of our Long Island Community, LI-TSA is considering arranging occasional support group meetings and/or socials for adults with TS. Before we can move forward with these plans, we need to get a good understanding of the needs in our community, and the types of activities individuals are looking for.

If you or someone you know would be interested in participating in an adult support group or social, and/or have ideas about the type of activity you would find useful and appealing, as well as the frequency, please contact us at:



New Research Program for Children and Adolescents with Tourette's Disorder

Tourette’s Syndrome is a neurological disorder involving motor tics (eye-blinking, mouth movements, head jerks, shoulder shrugs and arm/leg jerks) and/or vocal tics (fast meaningless sounds or noises, grunting, barks, shouting out single words or sentences, or repeating words) that start in childhood and persist over time.

Patients with mild symptoms of Tourette’s Syndrome are treated with behavioral techniques, but more troublesome cases require the use of drugs. Also, the diagnosis and treatment of Tourette’s Syndrome is complicated due to additional conditions including attention deficit/hyperactivity disorder (ADHD), obsessive-compulsive disorder (OCD), anxiety, and depression. These problems often require patients with Tourette’s to receive other medicines as well.

While the exact cause of Tourette’s Syndrome is unknown, disturbances in the chemicals controlling the nerves in the brain (neurotransmitters) are thought to play a major role. . Your child is invited to take part in a new clinical research program sponsored by Psyadon Pharmaceuticals which is using PSYRX101, a synthetic drug, where the active ingredient it Ecopipam, that acts as to stop the actions of one of these neurotransmitters and to help relieve the symptoms of Tourette's.

Dr. Cathy Budman’s practice, in collaboration with the Feinstein Institute for Medical Research, is seeking those with a diagnosis of Tourette’s Syndrome and are willing to participate in this novel approach at treating tics in children and adolescents.

You CAN participate if you:

  1. Have Tourette’s Syndrome
  2. Exhibit both motor and vocal tics
  3. Are male or female, ages 7 through 17 x Weigh over 20kg (45lbs)

You CANNOT participate if you:

  1. Have a history of schizophrenia, bipolar disorder, or other psychotic disorders
  2. Have a history of attempted suicide
  3. Have had a major depressive episode in the past 2 years
  4. Have a history of seizures
  5. Have had a myocardial infarction within the past 6 months
  6. Is a Female who is pregnant or lactating

If your child is currently taking some medicines for their Tourette’s, they may need to stop taking them before they can take part since these other drugs may complicate the test. Please speak with Dr. Budman about what this will mean for your child. If you or someone you know would be interested in participating in this clinical trial, please call: Bibu Jacob, research coordinator, at 516-562-1012 or e-mail at bjacob3@NSHS.edu.

Contact Information

Chrissy Demers, Research Nurse
516 562-1012

Cathy Budman, MD
400 Community Drive
Manhasset, New York 11030
Phone: (516) 562-3223
Fax: (516) 562.3997
Email: cdemers@nshs.edu

~ Thank you ~

to everyone who came out to support Family Fun Day
to help make our annual fundraiser such a great success!
We couldn’t have done it without you!
We hope you had as much fun as we did!!

~ Click Here to see the Family Fun Day album! ~


This event was sponsored by:

Astoria Federal




TEAM TSA National Awareness 5K Walk

Thank you to everyone who came out to walk and support LI-TSA


- With a special thanks to the Alessandri family and their friends for their support!


The Muise family leading a sea of teal...


Dylan and Cody Brady of "The Brady Brothers" from the Long Island Chapter performed along with other entertainers. Here are Dylan and Cody with 2 of their fans - Victoria & Emma


Dr S

With sincere appreciation to Dr. Sonnenklar for sharing her expertise at her very informative Parenting Workshop. The information shared, as well as the interactive discussion, provided all attendees with helpful and inspiring strategies to take home.

Dr. Braider

LI-TSA expresses its heartfelt thanks to

Dr. Laura Braider

who so generously shared her time and considerable expertise with us on Sunday, March 2nd. Chapter members went home with some very effective tools to add to their parenting toolbox, and hope that consistent use of those tools will lead to better self-control and cooperation in their children, and a happier home.

Congratulations to LI TSA's newly trained YAs Ben Rabinowitz and Jake Gilbert proudly wearing their teal ties as they lobby on Capitol Hill

Ben and Jake

TSA 2014 National Conference

Trip to the Hill and Youth Ambassador training was a huge success.

national conference

March 20-23, 2014
Crystal Gateway Marriott Arlington, VA



Our very own LI TSA Jen Zwilling, founder of the TSA Youth Ambassador Program, begins the day of training the new group of 47 2014 Youth Ambassador teams!


YA Capitol

Newly trained 2014 YAs Ben Rabinowitz and Jake Gilbert with 2012 YA Steven Argenzio and our 2014 Junior Ambassadors Charles and Chris League



Youth Ambassadors Steven Argenzio and Jackie Beckhardt had the opportunity to spend time with Hollywood star Dash Mihok


A sea of teal took over Capitol Hill today as over 180 Youth Ambassadors, Chapter Leaders and TSA members and families attended a Congressional Luncheon and then had a full day of meetings with their local Representatives to advocate for Tourette Syndrome!


Nowhere else can people come together in a warm, family-like atmosphere to learn from the nation's primary practitioners and researchers in the field, while gaining support, building friendships, and sharing experiences with peers.

The National Conference offers sessions for adults with TS, parents, teens and professionals on a variety of topics grouped by track, as well as provides networking opportunities.

LI TSA had a great Morning at the Movies....

morning at the movies


morning at the movies

as The Lego Movie states....

"everything is awesome"!
Bagels, juice, soda, pop corn, catching up!
We had a theater to ourselves! Priceless!


TSA Holiday Party
~ Thank you ~

to everyone who came out to join in the fun and festivities
of our annual year-end holiday party!
Family members from kids, to parents and grandparents
had a truly merry evening.

(Click the picture above for more pictures!)

~~ On June 5th Dr. Budman Chaired a symposia she organized ~~


The symposia, Tourette Syndrome: What Makes someone Tic,
was part of the Centricity Series, Biomedical Research Symposia at The Feinstein Institute for Medical Research. It was extremely well attended by researchers and physicians and was a great success.
LI TSA extends heartfelt gratitude to Dr. Budman for all she does for those living with TS.


Zwilling & King

Jen Zwilling, founder of the TSA Youth Ambassador Program presenting Representative Peter King with the National TSA Public Policy Award at Congressional Briefing in the Capitol on March 21, 2013

Coming soon: Click Here for more Photos


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LI-TSA please

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Donate to LI-TSA

100 % of donated funds go directly to programming for and support of




We are proud to announce that London Jewelers has designed a beautiful charity bracelet for LI-TSA, which is now available online!
LI-TSA bracelets will be available for $85, and London Jewelers will be generously donating $50 per bracelet to LI-TSA!

To order your bracelet, click on the bracelet above!



To join LI-TSA please click below to enroll through National TSA

Click to visit National TSA Site


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